Uses for Tragedy

Monday, August 09, 2010

There are a few things in this world that I hate more than church shopping. Truth be told I think I would rather be hung upside down on my toenails than work for a place of worship. Sitting in a wheelchair in the middle of church can often be one of the most excruciating things about being disabled, particularly since everyone wants to lay hands on me in an effort to heal my disability. As a rule, the more traditional the church and the older the church, the more this embarrassing behavior occurs until eventually I feel sorry for the want to be faith healers that their God is so small that he can only work amongst able bodied people.

So when I felt the need to find a church in London I made a deal with God. I prefer to be known as one of Gods more petulant children and I informed him that I would visit one church. God had one shot to impress me with a congregation of church folk to keep me committed to going back every Sunday. If he couldn’t, I wasn’t going back and I would give up going to church for another three years.

When I first lay eyes on the pastor of my now adopted congregation, I was leery to say the least. His button up cardigan, sandy brown hair, and confident smile immediately made me think of past members of congregations who tried to encourage me when I needed not encouragement, thereby providing discouragement or attempted to put God in their own image. I was not repulsed, so I promised that I would come back a second time. By the following Sunday, I did just that and was alarmed when I discovered, without requesting it from anyone, a ramp laid down to cover the single step it took to get into the church building. They saw that a member of their congregation would be helped by providing wheelchair access and unassumingly they immediately did just that. It was the first time a church had ever done such a thing for me.

A few Sundays later the pastor told a sermon which heavily featured his mother who had died a number of years before from motor neuron disease, otherwise known in America as ALS. In the sermon he talked about being a young man and fighting off faith healers with a broomstick to get them to leave his mother alone. For him, the disease was not necessarily something to be healed as it was something that could provide a better understanding to who God is and what life is all about.

To say that something good would come out of something tragic is at best a cliché. Whenever I’m feeling depressed and someone said that God will change my pain into something that would glorify him, I honestly want nothing more than to punch that individual in the face. Sufferers sometimes can’t hear about the great joys which can inevitably come from suffering, nor should that be forced upon them during a time of mourning. When one has just experienced tragedy, it tests first of all an individual’s patience. We feel that we will be sad forever; that life will never move on and we will be forever stuck in mourning. I am sure there were many hours of desperation my pastor felt while watching his mother slip away from him. Being faced with suffering of course, begs us to question things about God and life which we would be more comfortable ignoring.

To say that it was because of his suffering mother that I decided to join my church and become an active member of it would be a underestimate of the rest of the congregation. Truth is, I was attracted to the church not for the charisma of the pastor, but because during my times o visiting no one had attempted to heal me. This proved that the congregation understood that life shouldn’t be simple and rather the value of life is much deeper than our shallow limitations of what it ought to be or ought to look like.

There is something immensely comforting and wonderful about experiencing healing from a person who has once been wounded himself. It means not only do they have a genuine desire to see a condition improve, but that they have also been through the darkest night and know when it is appropriate to cheer you up and when it is more appropriate to just hold you while you are suffering because there is little else that can be done with any amount of sincerity.

“The other gods were strong; but Thou wast weak; They rode, but Thou didst stumble to a throne; But to our wounds only God’s wounds can speak, And not a god has wounds, but Thou alone.”

—Edward Shillito in the poem “Jesus of the Scars”

Having someone who has suffered as a confidant and friend as well as a leader means that he knows about the difficult questions which inevitably pop up when one is miserable. With the answers he provides I know that he isn’t simply faking a positive response that the problem will go away on it’s own. When he was a young man, his mother said to me when some able body woman he grew up with and declined into what that was completely dependant on anyone for anything. Having a spiritual leader who knows the way such a life is in the frustration that comes from it, who knows pain and suffering as well as death and joy which are brought out from situations that one would prefer to avoid mean that there is a level of genuineness in the help he offers to give. It also means that he fully knows that this world is not how any of us would like to live it. However, he will tell me whenever I am in the middle of such frustrations due to my own disability now that the pain I feel is just for the time being.

Playing with Chuggers

Friday, August 06, 2010

We call them Chuggers, which is a combination of “charity” and “muggers.” They are the people who stand on the street wearing matching t-shirts and holding clipboards in an effort to get you to give them money for whatever cause they are currently representing. These people actually are not volunteers; they are outsourced. Turns out some bureaucratic genius came up with the idea of having an agency that will be willing to stand on the street and solicit donations for any cause. One day they might be collecting for starving children in Africa; the next for the Humane Society, and the next day for child refugees in Pakistan, followed that weekend by underprivileged children in India. They are not passionate about any of the issues for which they are soliciting donations. Seeking out alms to protect those in need has now become a conveyor belt of individuals able to change their opening paragraph to suit any charity at will.

Due to my electric wheelchair, for the most part I can successfully avoid Chuggers. They are always on Tottenham Court Road and I am always able to weave in and out of them with great dexterity. Today however I was not so lucky. An overly cheery blonde Chugger got in my way and asked one of the most amusing questions I have heard in a while.

“What are you doing to help children with disabilities?”

She then proceeded to specifically name my disability as what her organization is raising money for. She isn’t seeing my disability and naming it, it truly is what this organization is devoted to. I look at her; the situation is absolutely comic. One would think that I out of all people would receive a get out of jail free card as to avoiding charity markets. After all, they are supposed to be giving money to people like me not demanding it. Today I can’t resist.

“So tell me more about what it’s like to have this disability?” I ask, just testing her knowledge a little more. She is good. She has definitely memorized the pamphlet. The problem is, she is preaching to the choir, considering the fact that I’m sitting right in front of her. I can’t help but press my luck even further.

“Wow that’s awful! How do those kids even begin to cope, what a terrible situation to grow up in.”

She thinks she has me now and offers me a pen and form to write down my bank details. “I’m sorry, I can’t write”.

“You can’t write at all?” She sounds the rare combination of disappointment and surprise. This was not in her training pamphlet when she signed on to be a Chugger. “Why not?” In the UK, Chuggers cannot write down your bank details, you have to do it for them as some sort of legal privacy act. Because I can’t write down mine, she knows she is not getting a donation.

“Because I have a disability”

This explanation has never occurred to her. I have no choice at this point but to shrug my shoulders and drive away.

For most people, disabilities don’t really have a place. They don’t recognize the problems caused by having a disability until they confront someone who is fully immersed in it. We shuffle our ill and dying into homes where experts can care for them so we don’t have to face the failures of the human body which will inevitably become our own. Worse, in Western culture we seem to like it that way.

But once we get to know someone with that condition, then all of a sudden the charity name disappears entirely. It turns into the condition that “Bob” has, but he’s able to live his life anyway and make us laugh at the local pub. We don’t see the weakness of people we know even when we are standing a few feet away from them. Rather, we see them as an entire being as opposed to fragmentary conditions. This is the difference between raising money for a cause and being passionate about one. This is why I call the people who stand on the corner of Tottenham Court Road Chuggers rather than charity collectors.

As I went down the street after my encounter, I couldn’t help but think of her original question which was actually quite poignant. What am I doing to help disabled children? The best thing for kids with disabilities is to have a society which sees them not as a cause or a victim but as unique individuals capable of racing towards their dreams and being exactly who they want to be. For disabled children, the greatest gift I can give them is not from my bank account but rather, be a successful adult and refuse the easy classification as a victim in need of a specified charity. Although, maybe that’s how the overly cheery Chugger saw me. She didn’t see the disability at all until it impeded her work. Maybe all she saw was the successful adult going down the street who wanted to help in any way they can.

He is at it again. After four beers in the course of ninety minutes, my friend is drunk. Or at least teetering on the edge of drunk and doing a fine job remaining stable while standing. But what is more stereotypical of the entire situation is not only is he drunk, he is in the middle of an argument and everybody is looking at me to put in my two cents regarding his unbearably loud opinion. I do the one thing I have been trained to do in this situation after coming across it several times. I grab my iPhone and begin to check my email as a distraction.

His argument is, regardless of the fact that he is highly intoxicated on beer and cider, nonetheless poorly thought out and I want absolutely none of it. Everyone at this point is looking at me beginning to ask questions which are directed at getting me to let go of my phone and participate, and I’m simply (adamantly you might say) uninterested. I know of the flaws in his argument. I’ve heard him argue the same point (even every once in a while while sober!) a million times before and it’s simply not interesting. It would be like a low speed chase. He says something which directly contradicts the sentence he said before and in this particular form of reediting, with the assistance of people also drinking alcohol and refusing to listen closely, they all buy it and his rant is able to continue. I’m beginning to wonder if it will eventually become indefinite.

The thing about being in a wheelchair most of the time is that there is absolutely no room for you to have a bad argument. People still automatically assume that I am mentally disabled or incapable of creating any form of reasonable logic. Even while drunk, my friend ranting in a pub gets automatically more respect assigned to him simply because of the fact that he is an able bodied man and able to stand up at the bar (barely) than I am as a woman in high heels sitting down in an electric wheelchair. At best, if I was using the level of pressure which he was using, I would receive people’s pity and at worst I would be ignored or mowed over by some other drunk guy who desperately needs an ego boost.

At this point in time with my friend gathering quite the crowd around him I have checked my email, texted my father, checked my stock, and played a game of Sudoku. Then he said something which for a sober woman, regardless of any sort of brain injury is just too good to pass up in terms of sheer absurdity. I turned my phone off and slipped it into my bag.

At this, everyone turned around and looked at me, “You finally decided to join the conversation?” The old man who always sits in the corner of the pub smiles at me, as he knows what’s coming. He’s been here long enough and seen enough political debates inside the walls of this ancient public house to know that I’m about to make my move and no one is quite ready for what I’m about to say except for him, and me.

By the time I finish my argument; which takes approximately thirty seconds, it is silent. Someone offers to buy me a cider and I quickly make a joke in order to change the tone. The argument is thankfully over and things can get back to at least being pleasantly entertaining even if they will never be profoundly educational. I am ready to have a drink. I am with friends and they all know me in a way that allows me around them to let myself go and fully be the full, silly self without being judged. My friends in this pub will never see me as incapable.

Recently it was my birthday and I started to think about what it was I wanted out of life during my tenth birthday. I don’t know why, but being a ten year old always seemed to be a special time for me, like it was the prime of childhood. All the books I read and movies I watched growing up, with characters I admired always seemed to be ten year old girls finding secret places that were especially their own. I looked back to a diary I kept during those days to see what exactly I wanted. See, I believe that each of us are built with desires and dreams imprinted on our hearts. These are the goals we are meant to reach for. These are the goals made for no one else but us. When we are young and unaware of the challenges set before us. This is when we are most aware of what it is we were meant to accomplish. As we get older, and things change, then racing for our dreams becomes less simple and we substitute what we were meant to do for what the world expects us to do.

A while back I lost a friend who informed under no uncertain terms that my aims in life were “unrealistic” and “It’s time for you to grow up anyway.” And it’s true, any dream you have as a young woman with a disability today is still highly unrealistic. There is no job field I can enter at this point with no typing skills and manual labor being next to impossible, where my lifetime career would be simple, straightforward, and predictable. Add to the fact that I work in the arts and the entertainment industry, which, according to him, is one of the most shallow industries in existence and you have a road map for someone trying to reach the moon without a rocket ship. He didn’t know it at the time I don’t think, but what my friend was asking me to do was to deny my dreams simply because the world wasn’t ready for them. Is unpreparedness ever a good reason to move on, particularly when it’s unpreparedness not on your behalf but on the behalf of the rest of the world? Would it be appropriate for an African-American fifty years ago to say that wanting to get a graduate school education at an institution like Vanderbilt was not a worthwhile dream simply because the school was located in an area that was still full of racial tension? Are we morally obligated to change our ambitions just because they might be difficult to reach or impossible given the current state of our society?

I can appreciate if someone has a child that is dependent on them or other obligations the strategy changes. Certain sacrifices must be made, particularly when it comes to earning a supporting those who are reliant on you.. But those of us who are able to get by and still repeatedly try to break down the walls we choose to leave standing might not necessarily have the sociological standard course of action. After all, if no one breaks down the walls that are obstacles in our own culture, they will never come down on their own accord. Rather, they will stay as imposing obstacles waiting for someone in the next generation to tear them down. And so, walls are made until someone is determined to make a ruckus and carry through with the demolition process fully.

Dreams are by nature just out of reach, and if they were easy to grasp and lasso down to the floor, would they be worthwhile dreams or just perpetuating the status quo. It is never acceptable to pass on your dreams simply because they are too difficult to accomplish. Difficulty is never a strong enough reason to quit anything.

There was a time when I was very very small, and I did not realize the limitations plastered on the wall. What I did realize was what my dreams were. At about the same age, I would go to sleep and not understand that the things I did after I went to bed and the images that came across my mind were not reality. The next morning I would ask my mom if she remembered flying over the moon with me or dancing with flowers on fairy dust patches. She would look at me and say “That didn’t happen, you dreamed it. It was a dream.” But it all felt so real to me, even after I woke up safely in my bed.

It’s the most vivid dreams, which no one else can see, that inevitably forces you to reach further than anyone without that dream would ever recommend.

An Uncharitable Right

Friday, April 16, 2010

“Charity is no part of the legislative duty of the government.” –James Madison

The 188 pulls up to my stop and lowers its ramp. The nervousness in my stomach disappears for the time being and I am momentarily at ease. In my experience there is about a fifteen percent failure rate of bus ramps not opening up. Now I just have to worry about the bus ramp opening up when I want to get off.

“It sure was nice of them to put those ramps on buses so you can use them wasn’t it,” a little old Irish lady says to me. Nice? No, actually, it isn’t nice. It is the law. When people with disabilities chained themselves to buses as a form of protest, it took years for the lawmakers to take action. It wasn’t until five years ago that all buses were required to have ramp access before leaving the depot. And even with that rule in effect, I still can’t get on a bus a large percent of the time. Call the accessible transit situation in London frustrating, hellish, difficult, or even unfair if you’d like. But you cannot call it “nice.”

I’m always a bit bewildered by people on either side of the Atlantic who insist that disability legislation is something nice for lawmakers to come up with. I’m with Madison on this one, it is not the role of the government to be charitable or nice. Establishing justice and securing the blessings of liberty and well as promoting the fact that all men are created equal is not merely something “nice” to do. One is baffled why the subject of disability rights is seen as an as issues hand-outs rather than justice.

President Eisenhower ordered the 101st Airborne Division of the United States Army to Little Rock High School to escort nine African American children into having the same education as their white peers. We do not look back on that event and say that Eisenhower was being “nice.” We do not give women the right to vote because it is a matter of social grace. Nor should we promote equal access to public transportation because it can act as a form of alms. Perhaps it is a statement about our society’s views of individuals with physical limitations that we choose to see such issues of inaccessibility as a form of inconvenience rather than social injustice.

The bus stops in Russell Square when myself and the woman alight. I again feel a sense of relief once I reach the pavement and turn to get to my appointment, smiling at the woman out of trained politeness. Looking behind me I see her walking away slowly, dependent on her wooden cane. I can’t help but wonder, as her body becomes increasingly uncooperative with age, if notices that her world is shrinking as well. Perhaps she doesn’t even realize that growing older and loosing stamina shouldn’t result in a smaller world.

The Man Who Tied My Shoes

Wednesday, March 24, 2010

From the moment I laid eyes on him I was stuck by how much the illness had ravaged his body. I had grown up in a place where I had seen my share of AIDS victims, or so I thought. But the ones I had seen, leaning their partner’s arm at an evening benefit for the local charity, was nothing compared to how ill he was. As he sat up in bed I wondered where the rest of him was. Then I realized his legs were still under the blanket. They were just so small that it looked as if nothing was there.

I don’t remember his name at all, which is funny because I swore to myself that I would always remember sitting on his bed. During my time at university, I volunteered to visit individuals who were struggling with the final stages of AIDS. South of the Mason Dixon line, this meant many of those we visited had been abandoned by their families. This is not to say that none of these people had loved ones who regularly visited the ward, but many did not. Given my age, my mother had to explain to me later just how terrifying the HIV epidemic was and the stigma which still remained.

“Don’t you know I’m… gay?” the last word wasn’t even whispered- it was mouthed. I nodded and kept asking him questions about the horses he used to train before he became ill. No matter how sick people are, it’s always stories which provide the most targeted anesthetic. In this case he was telling me about himself, what he did and who he used to be. He didn’t spend his whole life in this bed being nearly invisible, he was someone. And then he went and did something very strange.

“Your shoe is untied.”

“Wha-… oh yeah. I can’t tie my own shoes. Fortunately I don’t really walk much so-“

“Will you let me tie it for you?”

To say I was taken aback would be putting it to moderately. I was shocked. Can you get your shoes tied by a dying man? Was there precedent for this? I hesitated, not wanting him to lose any more of his precious energy.

“Please. I’m a very good shoe tying kind of guy.” I nodded and moved my foot to where he could reach my shoe, his transparent fingers working the magic it takes to tie a shoe, the motions of which I still cannot comprehend. He did it deftly, as every adult I know does. In a flash, he was finished a simple double knot remained which was tied with such determination that it would take my friend seven minutes to undo that evening.

I am here. Even though I am ill, I lived. I am somebody.

Six years later and I still think of him almost every time someone ties my shoes. Within a month he had left his body and someone else had taken his place in his bed. Long after his name was gone from my mind the stories of who he was and the actions of what he did that winter night stay with me. He was a man who desired, like all of us really, to be known and loved rather than to be immortal. Even in our weakest moments we want to touch, interact , and even to serve in order to confirm that our existence will be snuffed out long after the breath has left the body.

In his case, I think that for the rest my life, his existence will keep burning.

The Least of These

Monday, March 22, 2010

Recently, my friends in the UK have been inundating me with horror stories about health care workers taking anything but a patient’s best interest in mind. Yes, I realize that malpractice occurs in America too, and no, this isn’t another health care reform article. My conversations relating the experiences of my mainly able-bodied friends began to make me think about how we, as a society, treat not simply ”the disabled,” but simply the sick, the injured, and the aged as well. Its something even the “experts” can’t seem to get right.

If the mark of how advanced a civilization is how much we have evolved away from barbarism, then surely one definitive measurement of this progress is how we treat the most vulnerable in our society. This, of course includes not only the smallest and the most impoverished but also those whose bodies have turned against them due to either time or condition. And yet, even in our modern age, this level of civility is a standard that has yet to be reached in all but the most exceptional of cases.

This breach of advancement becomes even more despicable when one considers that a breakdown of the human body, in one form or another, is inevitable in all of us. By ignoring or disgracing those whom this breakdown has already occurred in,

what exactly are we trying to accomplish? Perhaps it is that we are afraid to acknowledge that human frailty is everyone’s fate, and the feebleness, the pain, which we see in the eyes of the man lying in front of us from his bed will someday be our own. When we are all faced with our own vulnerabilities, it is within our prideful nature to behave in the worst way possible, particularly when it is embodied not within ourselves but someone else. And so, we go on creating a world which will surly be unprepared for even our weakest days.

For decades, we have made health and caring for those in need of physical help an issue of politics rather than an issue of humanity. Even if we did have universal healthcare throughout the solar system, it does little to care for people in imperfect health outside of an institution. In this way, would the world outside of hospitals and urgent care center be fairer, or would it simply be cheaper to institutionalize the frail who inconvenience us to be dogmatically watched after? If we mean to fix all our health related issues with improving our respect for the frailty of the human condition, both the politicians and the doctors have fooled us into we our much more evolved simply by keeping our weaknesses out of sight.

Of course the words ‘integration’ and ‘rehabilitation’ are words that we hear those dressed up as reformers on the news shows spout out as well, but there are little visible effects of an attempt to improve the quality of life for individuals who don’t have the most cooperative body. Even the most compassionate health care which costs nothing cannot alter the fact that even today, even in the richest and arguably the most advanced and compassionate nations in the world, some schools still refuse to open their doors to disabled children and architects choose to put steps rather than ramps outside of new buildings because the former “looks more traditional.” This says nothing about the countless small issues of discrimination and even hatefulness that occur at the checkout lines or railway platforms.

If we consider ourselves an advanced society we are grossly mistaken. If we think any sort of government act will force us into being more progressive or charitable, we are lying to each other. Those are the changes to a culture which cannot take place by asking doctors to see more people or even handing complicated issues over to experts so we can keep our hands clean. We do a terrible job taking care of people who we find inconvenient in life specifically because we have built a world where their life is inconvenient. But all to often, by the time we realize how inconvenient the human condition actually is, is the time we’ve succumbed to it ourselves.

How to Crack an Egg

Wednesday, March 17, 2010

It’s the simple things in life that you usually don’t bother to understand. This is particularly true if you’re have a physical disability from very early life. You watch your father cook maybe once, it being difficult to see the countertop from a seated position, and after that you hear words like boil, sauté, fry and they literally mean nothing. Everything is simply something that Dad does standing in front of a stove. The idea of me, heat, metal, and sharp objects strike most people as a very bad combination. So when someone is always going to fry your eggs for you, you never learn what exactly frying an egg means.

Three weeks ago, when I committed myself to learning how to crack an egg, I couldn’t even think of holding one. The logic in my head went something like this: eggs are wrapped in special containers at the store, despite this, they still often break before one gets them home, the empty eggshells I see are brittle and paper thin. Ergo: eggs are extremely fragile and given my hand’s amazing ability to crush things I have no business holding them. When my friend asked me to hold an egg for the sake of warming it up from the fridge, my hands shot to behind my back and I took a step away.

I’m not sure why I even was so determined to learn how to crack an egg except that’s it’s the most difficult thing that I could think of to do. Holding one for the first time was shocking: its weight was something which was unexpectedly assaulting to my system. I thought they would be like air to hold, a brittle shell which would require just the pads of the fingertips to touch. In my twenty five year old brain, an egg felt like paper Mache, having never touched one for myself. What I found was a slippery stone that was so unexpectedly smooth that it took all five of my fingers to hold onto it.

“You’re going to have to whack the thing harder than that if you ever want to crack it,” my friend stated as I gingerly knocked it against the bowl. I was afraid the shell would end up in the bowl. Which it did. And the entire contents of the egg ended up in my lap. The worst outcome possible of attempting to crack an egg had come to reality. And the world did not end. So we move on, grabbing another egg out of the pack. (I had bought one of those super cheap value packs with fifteen low quality eggs for under a pound. I figured if I ever showed a real talent for consistently cracking eggs successfully, then I might be able to move on to organic grade free range eggs.)

The thing is about eggs, they are built in such a way that seems like they are meant to be cracked. Between the support of the yolk to the membrane which keeps the shell together after it’s cracked, man has yet to engineer any better form of packaging. But I never knew that because I had never come near holding one. The fact of my inexperience was interpreted as I could not crack an egg when, in actuality, I simply didn’t know how. To complicate the situation I technically could tell someone exactly how to crack an egg. I knew how to complete the task in theory but because I knew nothing about an egg itself, I was petrified of doing it at all. My own condition didn’t directly stop me from accomplishing a task, it was simply a lack of occurrence.

In a way, that lack of experience is them most disabling thing about being disabled. When three different therapists are watching you at age seven attempt to pour juice into a cup, there isn’t much room for the spills that come whenever you are gaining experience. And when Mom has always poured your juice for you, how can you even remotely begin to know what fine motor skills it really takes to hold a jug. There’s so much of the world you don’t even know how to begin to experience unless you can sit there and honestly be given a chance for a raw egg to fall into your lap. It’s not that you don’t know unless you try, it’s that you don’t know until you’re given the opportunity to really make a mess in order to figure out how things work.

Six days later, my friend and I made a fifteen egg omelet for a dinner party. It was made of free range eggs.

Do They Have an App For That

Wednesday, March 10, 2010

I’ve seen the commercials. The male announcer almost teases you with the idea that all your problems will be solved if you only buy the correct application for under a dollar. And from the stance of creative businesswoman, the App Store for the iphone is enthralling. With no overhead, a constantly changing storefront and boundless creativity, this is, without a doubt, the correct formula for the next stage of entrepreneurship for the new frontier.

If only that ‘boundless creativity’ would come in the form of faster evolution.

After all, what exactly is the use of a program which is an alarm clock on a device where one is automatically build in. Better yet, how about coming to and end of a fine dinner and being unable to calculate the tip without the help of your trusty technological companion. Or there’s always the program, that tells you about what other programs have come out and which other programs you need. (This one, much to my surprise, was not created by Apple.)

I bought an iphone in hopes to make my life as a disabled woman easier. With life in this position one is dependent on barons of industry, invention, and software to make life not simply more convenient but also simply livable. To say that my iphone has changed my life would be an understatement. But I was also one of the first people investing in voice activation all the way back in 1994, and have since thrown money at nearly every piece of assistive technology conceivable. In the case of adaptive tech hardware and software, it really doesn’t matter what sort of resources you have, if can’t be sold to the mainstream population the software will not advance.

This is how we get over 200 software developers which create alarm clocks, and no program that will actually call a London black cab. After all, my friends argue, its easy to hail a cab off the street. But figuring out what fifteen percent of your dinner bill is… that’s a real challenge.

The App Store illustrates to me that the leaders of industry are few and far between while those who have the programming skills but lack the imagination are well in abundance. It’s proof that just because there are lots of hands which can make the industry move forward, without the brains there is little guarantee of it doing so. Looking at what sells today will only show you what you should’ve been selling yesterday. And so to hop on the ‘alarm clock bandwagon’ only serves to tell you where the industry is. As with any other form of progress the market has to look to the needs of people who are not in the mainstream to figure out what comes next.

The Uncracked Egg

Friday, February 26, 2010

I never really realized how heavy an egg was until last week. As I put it to my friend yesterday when we were meeting for lunch, “I’ve always had people to crack eggs for me.”

This year, in a feeble effort to simulate Julie and Julia, my neighbor and I decided that we would start baking each Saturday. Four weeks into our challenge and we’ve thus far made Victoria sponge, carrot cake muffins, a diabetic coma inducing chocolate meringue (aka a gooey chocolate stack), Norwegian cinnamon rolls, and a much bigger mess on my kitchen table than I ever knew was possible. My neighbor will tell you otherwise but the mess is mostly due to my interactions. During our second week of baking I decided that this had to be a therapeutic activity rather than simply that of leisure. My mother tells me that this is proof that I’m adopted from a bunch of militant Germans.

Its not that my family isn’t so much of the baking type as it is my lack of life experience which make the idea of baking so novel. With being even semi dependent on other people comes a huge amount of both tactile and practical ignorance. People make you a cup of tea because it is either impossible or you’d kill yourself trying to make one. As a result, you don’t know how your kettle works, nor how long you steep your tea for, or why different people can take the same request (will you make me a cup of tea please) and have it come out totally differently. Don’t even think of asking my how my washing machine works, all I know is I can’t turn any of the knobs on it.

On Saturdays I am once transported back to my childhood. Actually, that cliché is incorrect as it suggests that I have experienced the sensations of baking before. I have never done anything remotely like baking before. When I go to sprinkle flour, I am still shocked at how cool it feels to the touch. I marvel at how easily it slips through my fingers. I get frightened every time I come within about one yard of even a butter knife, irrationally terrified of stabbing myself with it. And I still refuse to try and crack an egg. I can only see disaster coming out of any attempt of egg cracking. This is where my overly logical adult mind kicks in no matter how much I fight to be childlike. It I manage to crush an egg rather than crack it, I’ve done it wrong, ruining the whole thing. My adult mind should then logically tell me that the world will keep turning and there’s more eggs in the basket as it were, but my mind has yet to reach that level of maturity yet.

Learning how to crack an egg has become my newest goal. Each week my neighbor holds an egg out towards me, lovingly offering me an opportunity to challenge myself. And each week I shake my head, agreeing to watch her do it for another week. Watching someone else do it correctly doesn’t teach you half of what you learn by doing it badly yourself. And so I continue to be surprised by the weight of an egg, have no idea exactly what it takes to crack its shell, and always waiting for someone else to do it for me.

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