An Alternate Universe
Friday, October 08, 2010
People often ask why I do not join a community built for cripples (actually they say “individuals with physical limitations” but the stigma is still the same). I have trouble finding friends who also have physical disabilities and when possible, usually find it best to look at a person not for what he can or cannot do, but rather, who he is or isn’t. In this way, disabilities are the last thing that enter into my mind when examining the qualities of a particular individual. Many I speak to often find this point frustrating, occasionally to the point of hypocrisy. For me, it is simply, life.
I was never raised to be disabled. Growing up, my family did everything to keep me out of an extremely flawed special education system. Even today, the United Nations report that only three percent of all people with physical disabilities in the world are able to read. (http://www.un.org/disabilities/default.asp?id=18) Among women, that goes down to just one percent. This means that out of four hundred disabled women in the world, only one of them is literate. If this shocks you, I’m not surprised. It is shocking. Our world is blissfully unaware of what living conditions are like world wide for people with disabilities.
Recently I saw a report from the mayor of London analyzing the learning conditions of persons with in a city some consider the world’s capital. The title alluded to the idea that people with physical limitations almost live in a different city than London. Being unable to use a form of mass transit such as the London Underground and unable to access many of the neighborhood shops on any high street, people who have any sort of physical limitation know a very different London than those who are able bodied. Transportation is slower, stores with narrow aisles a bigger challenge, invasive even, and the looks from people on the street will often send individuals back inside their houses in order to avoid hostile environments.
But being disabled does not stop with environmental issues. As in any civil rights battle, the problem is steeper and more complex than one would care to imagine. When I was growing up I heard over and over again, “Be patient with yourself” and “take it slow.” Now why I would ever want to slow down when it took me and hour and a half to get dressed that morning is beyond me. However, taking it slow often gets transformed into setting lower goals for individuals with disabilities. It means taking it easy rather than slowly chipping away at a complex algebra problem. Some things, particularly in education cannot be rushed but more often than not the goal post for disabled individuals is removed entirely so that a substandard type of performance becomes acceptable lessening the amount of homework problems, showing the student that he should only have to read the Cliff Notes rather than the whole book, or even insisting that a book is too difficult for a student to read are all common occurrences for someone who was raised to think of himself as physically disabled and therefore expected to take no initiative in his own life. Thus, more often than not, the great schism which faces individuals with physical limitations is not the level of access in their environment but it is their submission to a type of institutionalization which works for societies comfort rather than the students good.
As has been the case with civil rights issues in the past, this false education and insistence that individuals with disabilities are helpless is more detrimental than any staircase or missing form of public transit. It is through the educational system that individuals with disabilities are still often given different books, different classes, different teachers, and different expectations which causes the schism between the fully able bodied world and the disabled world to continue year after year after year. By insisting that the disabled world is somehow separate (nobody said anything about equal) from the way fully able bodied people live their lives means that there will always innately be that division between different people. Inevitably by keeping any population separated, society ensures that they are marginalized. The mayor of London is right, living in London with a physical disability means living in an entirely different city than Londoners who are able to get about without much thought. Perhaps this is why I am so impatient when well meaning individuals tell me to take it slow. It takes me so long to get to my destination in the first place, if I were to take it slow I fear that my world would stop altogether.
Tags: disability, Education, Politics