Never Walked In High Heels

“Charity is no part of the legislative duty of the government.” –James Madison

The 188 pulls up to my stop and lowers its ramp. The nervousness in my stomach disappears for the time being and I am momentarily at ease. In my experience there is about a fifteen percent failure rate of bus ramps not opening up. Now I just have to worry about the bus ramp opening up when I want to get off.

“It sure was nice of them to put those ramps on buses so you can use them wasn’t it,” a little old Irish lady says to me. Nice? No, actually, it isn’t nice. It is the law. When people with disabilities chained themselves to buses as a form of protest, it took years for the lawmakers to take action. It wasn’t until five years ago that all buses were required to have ramp access before leaving the depot. And even with that rule in effect, I still can’t get on a bus a large percent of the time. Call the accessible transit situation in London frustrating, hellish, difficult, or even unfair if you’d like. But you cannot call it “nice.”

I’m always a bit bewildered by people on either side of the Atlantic who insist that disability legislation is something nice for lawmakers to come up with. I’m with Madison on this one, it is not the role of the government to be charitable or nice. Establishing justice and securing the blessings of liberty and well as promoting the fact that all men are created equal is not merely something “nice” to do. One is baffled why the subject of disability rights is seen as an as issues hand-outs rather than justice.

President Eisenhower ordered the 101st Airborne Division of the United States Army to Little Rock High School to escort nine African American children into having the same education as their white peers. We do not look back on that event and say that Eisenhower was being “nice.” We do not give women the right to vote because it is a matter of social grace. Nor should we promote equal access to public transportation because it can act as a form of alms. Perhaps it is a statement about our society’s views of individuals with physical limitations that we choose to see such issues of inaccessibility as a form of inconvenience rather than social injustice.

The bus stops in Russell Square when myself and the woman alight. I again feel a sense of relief once I reach the pavement and turn to get to my appointment, smiling at the woman out of trained politeness. Looking behind me I see her walking away slowly, dependent on her wooden cane. I can’t help but wonder, as her body becomes increasingly uncooperative with age, if notices that her world is shrinking as well. Perhaps she doesn’t even realize that growing older and loosing stamina shouldn’t result in a smaller world.

Last week, while I was on holiday, Never Walked in High Heels finished its first year of publication. A year ago, a friend said that he read some basic rules for starting an electronic publication and they all recommended the same thing: patience.

I always have thought myself to be a very patient person until about a year ago. Due to my disability, I’m always last in line, waiting for doors to be unlocked, and dealing with my own slowness in daily tasks. If anyone was going to be impatient it was never going to be me. And then I became a working professional. And, if that wasn’t enough, I was working in a world that wasn’t used to seeing people like me work. To top it all off: I’m working in the arts.

Here’s the thing they never tell you during those inspirational movies about crusaders who beat the odds and come out changing the world on the other side of their struggles, there was always a ton of waiting around. If the struggles themselves don’t get you, the waiting game surely will. Take a look at some all time favorites such as My Left Foot. It looks like all the sudden Christy Brown wakes up in the morning and decides to write ‘Mother’ on the kitchen floor. What you don’t see, is the ten years before, when Brown’s mother stared at him wondering what she did wrong, nor do you see the months of laborious and profoundly unclear dictating it took to write the books he’s so famous for. (You also don’t see him choking to death on a pork chop after supposedly being abused by his wife who may have been a lesbian… but hey, even Hollywood has its limits.)

Gandhi’s hunger strikes get condensed to a quarter of an hour. Helen Keller is saying “wa-wa” in the first scene. And William Wilberforce’s twenty years of fighting against the slave trade takes about two hours on film.

I remember once I asked a friend, who was an ex-cop, if crime shows were accurate. He laughed and said, “if they wanted to make it realistic, they’d have to add a lot more paper work and cups of coffee. Nobody would watch it.”

The truth is, I am impatient when it comes to myself, my dreams, and what I want to accomplish. And as I compare my readership this week to what I thought it would be a year ago, I am disappointed. And, if I allow it, I begin to let the waiting game beat me because I’m falling short of my own unreasonable expectations.

A year of Never Walked in High Heels means just under one hundred and fifty essays, two freelance assignments, and a steadily increasing readership. If anyone else accomplished this, I would have said “well done.” Somehow my biggest fault is to want to live in the future, rather than the here and now which will inevitably get cut in the edited version. So when I sit down tonight and, like a good little entrepreneur, sketch our my plan for the next year, I will have to have my roommate hide all the inspirational movies she can find.

It was the last purposeful thing I ever remember my grandmother saying before she was permanently pulled below the waves of dementia. The entire family was gathered in my uncle’s living room, waiting for his last daughter to be married. My mom’s mother had been going in and out of our world and her own for the past several years, but in this moment she was perfectly balanced on the boarder of our harsh temporal planet and her universe where time was cyclical rather than linear. My grandmother turned to me, introduced herself, and then acknowledging the harpist hired to play at the wedding said, “if I had to live my life over again, I would learn to play one of those.”

I think of that statement often when I lay on the sofa in the home of one of my dearest friends and she plays her harp. She is newly married and nesting, the elegant harp looking slightly out of place amongst the used leather couches and prefab furniture. She looks positively angelic as her fingers leave the strings and she straightens her back in a way that shows her immense beauty hidden by her everyday posture. I open my eyes to look at her and for a split second I am jealous of her talent.

“I have got to sell my harp,” she declares walking away from the instrument out of frustration. “Every time I look at the thing in my living room I feel guilty because I know it should be played in a symphony orchestra and not be here to fiddle around with when I feel like it.” She quickly explains that she’s not about to give up playing, she simply wants to sell an otherwise brilliant piece of equipment to someone who could appreciate the music it makes on a consistent basis. She says that as she was learning to play the harp, she always was a disappointment to her teachers who wanted my friend to turn professional rather than play the harp for enjoyment.

And I am instantly reminded of my grandmother’s statement right before a vacant expression overtook her eyes forever.

I often wonder what talents I will regret not sharpening thirty years from now. Sometimes I swear to myself that I will try every activity that strikes my fancy at least once. And then I look at my friend’s harp and my uncooperative hands, a pair of toe shoes, or even the wii at our local pub, and I know such a promise is impossible to keep. The nature of this vast and seemingly endless world is one that might just give you the freedom to race towards all your dreams but it certainly won’t give you the time. Thinking of my grandmother growing up on a rocky hill in the Ozarks, the opportunity to learn how to play the harp was as slim as me learning how to dance en point. And at the end of her life, she still had unrequited dreams which she wanted to announce to someone she thought was a perfect stranger.

My friend begins playing again. For her, as for any of us really, with her talents come great responsibility to use her talents not only to the best of her ability but also with discretion. For her that means selling her professional harp to a musician who will use it professionally. More often than not we take the talents that we do have and, taking them for granted as commonplace, wish we had other skills in our capacity. If something comes easy to us, we tend to think it is easy for everyone and thus unimpressive. For my grandmother, at the end of her life, it was the harpist sitting in the corner of her son’s living room that represented second chances and unfettered dreams. For my friend playing the harp, keeping up her skills is not simply a blessing, but also a burden of responsibility. And for me, my jealously of other skills robs me of my time, so that, if I am not careful, by the end of my life, I will turn to a stranger and say what I would do differently, if I had to life my life over again.