The Crazy Girl Next Door

Monday, January 25, 2010

“Going out with you is like going out with the crazy girl,” my friend says on the other end of the line. “No I’m not. I’ve always considered myself more of the girl-next-door type,” I replied. I can’t help but laugh. I had just rescued my chair from a building in the center of London. While attending a class in the basement, the lift had decided that it would be an opportune time to break, trapping me and my wheelchair downstairs. I am fortunate enough to be able to walk up the stairs, but my 400 pound electric wheelchair had to be left overnight. The next morning I received a phone call saying that the lift would be broken for at least three more weeks as new parts had to be ordered. My wheelchair was still stuck within the basement.

Seeing that I needed it to get around London, I immediately called two of my guy friends who are able between them to get the wheelchair out through a secret passageway (I kid you not!) in the building. Apparently, this passageway, kept behind locked doors, was formerly used as a shooting range for the British militia. So through the super-secret, hidden, locked, forbidden passageway the three of us climbed after my wheelchair was taken up three small steps in order to enter. We even had flashlights in tow to make it more dramatic.

To say that trouble follows me is an understatement. Don’t get me wrong, it’s rarely anything I do. But between the collapsing toilets, the broken elevators, and a plethora of dead batteries at very inconvenient times, I am beginning to be known amongst my guy friends as Calamity Jane, someone who is always a damsel in distress. They answer the phone and immediately wonder what sort of sticky situation I have now gotten myself into. The thing is, it’s nothing to do with me. Really, it isn’t. I live as normal of a life as you can imagine. I go up and down stairs using elevators. I accomplish precisely what any able-bodied person does. And it’s not as if I’m trying to scale the walls of Big Ben or create some other mischief. Believe it or not I’ve come to the conclusion that things of this world are not particularly ready for someone in a wheelchair to conquer.

None of my friends realize until I tell them that we live in a world in which disabled people are not expected to go out much. At work they estimate that as much as 75% of disabled people go out of their homes once a week or less. This is the city in which public transportation can be a nightmare for anyone who doesn’t travel on two feet. Services such as Shop Mobility and Dial-A-Ride which as supposed to help individuals with physical disabilities to get around put a strict limit of using their services 6 times a month per person. For me and my career, I’m lucky if I don’t need to go to 6 different places a day. Such restrictions not only prove the point that disabled people are not mobile, it reinforces it, thus creating a cycle that London has yet to break out of. Unless you’re me, and then you run the risk of being trapped in the basement of a building whose lift has just gone out.

I once had a wheelchair vendor come to my house for a yearly tune-up. He was able to plug a computer into my electric chair and get a reading of exactly how far I had traveled in it within the past year and a half. When he saw the mileage, he dropped his computer. “You ride your wheelchair hard. It wasn’t meant to be used this much.” What does he expect? My life has taken me all over the city and actually all over the world. When I buy a wheelchair I expect it to keep up with my way of living, not the other way around.

I am often told by my friends that people still stare at me when we go out together. This actually is news to me as I usually don’t notice. But the fact that seeing someone out in a wheelchair still is a reason for stares, shocks most of my friends as much as it does the other party in seeing me.

I’m not Calamity Jane. I’ve always actually considered myself a girl-next-door type. But the fact that when my number pops up on the phones of my guy friends, they begin to itch, wondering what adventure will come next. And in this way, maybe my friend is right. I guess every neighborhood has one and I’m it. I am the crazy girl-next-door.

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